So what I haven’t had the time and energy to say on here….

Mom went to the doctor’s on the 21st.. which was a big ordeal in of itself. She was started on a medication for her severe dementia, as she has had increasing episodes of agitation and restlessness, particularly at night. She has been getting up a minimum of 8 times a night (with me providing help), but on her worst, she was up 22 times in the span of 5hours. The first few days she did alright on the medication.. sleeping much better through the night. However, as of Wednesday at 8am… she proceeded to stay up for 53hours straight. She was delusional, agitated, combative. By Friday, the original med should have been out of her system, and we started a different one. Since then, she has been mostly sleepy, yet still restless, with some very brief periods of coherence. She is tolerating only sips of liquids. The last food she ate was Thursday evening. She has tried to choke on the simplest of things since then, so that has been stopped…. per her written wishes.

Needless to say, her care needs have increased dramatically, and we have moved her into the living room for closer observation. She has been designated as Palliative Care, but tomorrow there will be an assessment by members of the Hospice team, and we will go from there. I am hoping to get a hospital bed provided for our ease of use, as well as improved comfort for her.

Life is crazy, wonderful, full… and exhausting. More tomorrow.